I have started to write-up the naturopathic protocol I have been following since early 2023 here:
https://lawrenceoconnor.com/2023/12/24/naturopathic-oncology-pancreatic-cancer-protocol/
I now am in the privileged position of supporting others who are facing a similar challenge, particularly through the Always Hope group that has been of so much help and support to me at: https://www.facebook.com/groups/1666326947166815/
I am eternally grateful for the amazing support I have received. There are so many wonderful, kind and generous people in the world.
To all the people who have contributed to my Yes to Life justgiving fund, including those who contributed to me directly as a result of it:
……•.¸(•.¸♥¸.•´)¸.•……
♥•°THANK YOU°•♥
…….•(¸.•´♥`•.¸)•…….
You been a critical part of making it possible for us to get through a dark time which, wonderfully, we now seem to be on the other side from and now have all we need financially and I am pleased to be able to close my Yes to Life Justgiving page from accepting contributions.
I should be fit enough to soon be able to start making and sending contributors their solitary bee houses that I promised for each contribution. The Yes to Life charity, under whose auspices the page is set up, is not allowed to release to me any name or contact details of contributors that are not made visible on the page when they make their contribution. I will do my best to identify who each of them are and hopefully be able find a way of contacting them so I know where to send them their bee house.
UPDATE 29th March
Still working the protocol hard. Continuing to respond to the many enquiries I have from people who want to find out more about my diagnosis, prognosis and what I did and who I have worked-with to get to be ‘NED’ – no evidence of disease.
While a long way off from my former physical fitness as it was before the effects of the cancer and of the chemotherapy, I continue to regain my health and stamina, week-by-week.
Still on oral capecitabine, which causes painful stomach pains (one of its known side-effects) to keep any residual cancer cells that might still be floating around from propagating and also spending more time than I would like to have to inside the HBOT (hyperbaric oxygen therapy) chamber but this helps mitigate the effects of the chemo. Finding ways to make the time in the chamber productive.
Walked 17.Kms across a mountainous trail this month!!!
UPDATE 1st March 2024
Had scans and TACE chemo round two weeks ago with Professor Vogl who has confirmed all the previously seen activity is now gone. On oral Capecitabine to ‘mop up’ any rogue cells still floating round my system but, currently, I am ‘NED’ – no evidence of disease. Next scheduled appointment is a control scan in early June.
UPDATE: 14th January 2024
The Cancer Appears Again
Had the results of the scans in November looked at by two, wonderful and skilled consultants who have been like guardian angels to me through this experience: Professor Thomas Vogl of Frankfurt University hospital and Professor Edward Leen of Princess Grace hospital, London. Turns out there are currently two newly identified ‘likely’ and ‘almost certain’ tumours in my abdomen.
Interestingly, the Multidisciplinary Team at Hammersmith Hospital met recently, including oncologist, Professor Harpeet Wasan, and was of the opinion that there is no cancer activity. Nevertheless, I have been shown the sites of activity in the PET scans by Professor Leen and Professor Vogl also agrees that this is recurrance activity, for which I have resumed oral chemo and will be travelling to Frankfurt University for TACE chemo and/or perfusion chemo.
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This is work in progress, following recovery from the adenocarcinoma of the pancreas that, as of January 2023, I had been told was terminal and for which I was also told I was unresponsive to chemotherapy. I had been referred to a hospice and was due to visit to ‘look around’ ahead of my expected end-of-life stay there. As of scans in November, I am weak but my body shows no signs of active cancer…
At the foundation of my actions to achieve and maintain recovery from this disease is the karma-changing Buddhist practise of chanting Nam Myoho Renge Kyo as a member of SGI-UK – lay Nichiren Buddhist organisation for the creation of value through peace, culture and education.
#mudintolotus
#protocol
Following a first, failed resection in September 2022 and then being told the cancer was ‘unresponsive’ to chemo and given a terminal prognosis of 12-18 months survival as of January 2023, the first two, prime steps I took were:
1. To ask myself ‘Do I want to live?’ and to answer *honestly*.
2. The answer being ‘yes!’, committed to take unrelenting massive action.
Here, below, is one of the main components of my naturopathic protocol in helping in shrinking the locally advanced pancreatic cancer tumour sufficiently away from the hepatic arteries and veins that it had partially encased, to then enable its surgical removal with clear margins, for recovering from the cancer and, ongoing, to deter recurrence, along with HBOT and mistletoe injections. Please note that I didn’t action everything in the list below all the time. But I did do everything on the list that it was within my power to do, as continuously as possible. Some continuity was deliberately interrupted, periodically, for ‘pulsing’ components of the protocol:
Naturopathic protocol from Linda Sinclair (https://www.always-hope.co.uk/appointment/) and who’s group is a valuable resource of encouragement, information and support: https://www.facebook.com/groups/1666326947166815/
For hyperbaric oxygen therapy and IVC, I go to prescribing nurse Laura Homan who’s clinic is Positive IV, England. I have also enjoyed and benefited from brilliant Chedgrave Oxygen Therapy and its fantastic team.
For options for chemotherapy and radiology, as well as trustworthy, honest expert medical opinion and treatment, I continue to be supported by Professor Thomas Vogl, Frankfurt and Professor Edward Leen, London.
The tough 11 rounds of Folforinox early on were courtesy of Professor Harpeet Wasan, London. As horrible as the experience was and as ‘unresponsive’ to it I was before I started my naturopathic protocol, he and his team, as well as the truly wonderful oncology nurse specialists at Imperial College NHS trust are forever held in my eternal respect and gratitude.
If anyone close to me needed HPB diagnosis, treatment and surgery, I would recommend them to the fantastic team at Hammersmith Hospital, London including Mr. Pai who looked after me on the ward and gifted surgeons Mr Duncan Spalding and Professor Jan Henrik Storkholm as well as the whole team and system of practice of HPB ward ‘A8’ including physio, nutrition and pain management. I felt collaborated-with and that my integrative, naturopathic approach was listened-to, respected, trusted and incorporated into their medical decisions.
Disclaimer:
This information is from my naturopathic oncology advisor, Linda Sinclair, based on researching and is not medical advice. Please always consult a medical professional.
Dosing suggestions are taken from suggested prescriptions written by medical professionals and are not my personal suggestions.
Some supplements are repeated to ensure the therapeutic doses are received.
Always introduce meds and supplements one at a time in case one doesn’t agree with you. If you start with lots, you can cause nausea and would not know what didn’t agree with you and would have to stop everything and start again.
Every 3 months change some of your supplements for things covering the same pathway so that your body does not get too used to them. Switch back after 3 months.
If liver enzymes rise very quickly over a short period of time, and there is no jaundice or rise in bilirubin this can be a sign of die off, especially if you have liver metastases. Cancer cells can impact on ALT, AST and GGT readings as they die off.
You should stop most of the protocol, except autophagy inducers and focus on detoxing. Monitor the levels and when they come back into range, restart the full protocol. Coffee enemas, Epsom Salt baths and 2DG for detox. Dead cells (tumour lysis) need to be cleared.
Morning:
1 x 500mg Metformin (stop 3 days before scans)
1 x 500mg Grapeseed Extract OPCs
1 x 1000mg Quercetin with 1 x 500mg Resveratrol
1 x 300mg Indole-3 Carbinol-13C (twice daily with food) Converts to DIM in the liver. Get DIM if you can.
1 x 700mg Green Tea Supplement
Hydroxycitrate 1000mg
1 x Niclosamide 1000mg daily with olive oil or fish oil for absorption
1 x 500mg curcumin
1 x 300mg Alpha Lipoic Acid (stop 24 hours before chemo)
1 x 300mg Artemisinin (away from food perhaps take between meals with digestive enzymes. Not Creon. This is with meals) See attached document with email.
Reishi 6g powder in 2 doses (Bristol Fungarium or Antioxi websites)
2 x 500mg capsules milk thistle or 1 tincture dropperful
2 x Loratadine 10mg each
1 capsule Omega 3 combined EPA and DHA 700-1000mg with 75mg Aspirin for synergy. Increases production of Resolvin. This is the body’s natural anti-inflammatory.
Lunch:
1 x 500mg Berberine (stop 3 days before scan)
1 x 500mg Niacin Vit B3
2 x 500mg capsules milk thistle or 1 tincture dropperful
1ml Gymnema tincture (28 drops) or 400-600mg tablet form and 200-1000mcg (NOT MG) Chromium Picolate together. Chromium Polynicotinate has more bio availability if you can get it.
Mebendazole 300mg taken with fats. Pulse 3 days on and 2 days off.
1 x 700mg Green Tea Supplement
1 x zinc 50mg
1 x selenium (yeast form) 400-800mcg or sodium selenite 300mcg. Keep to 200mcg when on chemotherapy.
1 x 300mg Alpha Lipoic Acid (stop 24 hours before chemo)
1 x 300mg Artemisinin (away from food perhaps take between meals with digestive enzymes. Not Creon. This is with meals)
Eugenol found in clove, nutmeg, cinnamon, basil and bay leaf
2 x 500mg capsules or 1 tincture dropperful
Evening
1 x 1000mg Quercetin (Twice daily) taken with 1 x 500mg Resveratrol.
1 capsule Omega 3 combined EPA and DHA 700-1000mg. No Aspirin with this dose.
1 x 300mg Artemisinin (7days on 7 days off and stop antioxidants. See attached document with email)
1 x 500mg Chrysin
1 x 700mg Green Tea Supplement
1 x 500mg Grapeseed Extract OPCs
1 x 1000mg Sea buckthorn Oil
1 x 300mg Indole-3 Carbinol-13C (twice daily with food)
5000iu Vit D3 with K2 to ensure that calcium is absorbed into the bones, not soft tissue. Take with Genistein as they are synergistic.
1 x 500 mg Metformin (stop 3 days before scan)
1 x 500mg curcumin
2 x 500mg capsules milk thistle or 1 tincture dropperful
1 x glitazone 500mg (once or twice daily)
Black seed oil (see below)
1 x 300mg Alpha Lipoic Acid (stop 24 hours before chemo)
1 x 300mg Artemisinin (away from food perhaps take between meals with digestive enzymes. Not Creon. This is with meals)
Sulfasalazine (lowers glutathione inside pan can cell. Take alongside chemo. Prescribed.
Hydroxycitrate 1000mg
Bedtime:
4.5mg Low Dose Naltrexone (titrate up to this dose)
100mg Melatonin at night
THC oil
Pulse Berberine one month on and one month off if taking Metformin too. If only taking Berberine, have a month off every three months.
Pulse Mebendazole one month on one month off with Doxycycline. Note that Doxycycline should be taken with a full glass of water and 2-3 hours away from zinc, calcium, magnesium and prescribed iron (no iron unless deficient) as they can reduce absorption.
NICLOSAMIDE HAS TO BE PRESCRIBED BUT IS IMPOSSIBLE TO ACCESS ON PRESCRIPTION IN UK. NICLOSAM WEBSITE SELL IT AND THE COMPOUND PHARMACIST IN THE GROUP HAS TESTED IT.
Pineapple 2-3 times a week for Bromelain
Blackseed oil. 1/4 teaspoon with food on 1st day. 2-7 days increase to ½ teaspoon twice daily. Slowly build up in increments until you reach 3 teaspoons a day. Information is from www.theblessedseed.com
Additional supports to consider.
Vitamin A 25,000iu- 30,000iu daily in advanced cancer. Lower to 5000iu if ALT or AST is over 300
Salicinium (Orasal) Breaks down the outer shell of PC cell
Ellagic acid 8 ounces from pomegranate, grape or berry juice.
Creon with every meal, and additional digestive enzymes between meals
IV VIT C 2-3 times a week or 6000mg Liposomal Ascorbate daily.
IV Paricalcitol 25mcgs 3 times a week
Ashwagandha herb 2 capsules 3 times daily for stress
Losartan
Shark Liver Alkylglycerols
2DG regulates aerobic glycolysis on the glucose feeding pathway.
2DG dose 2g in 2 litres of water, taken with Berberine 500mg. IT SHOULD NOT be taken in one dose but taken slowly over the course of the day. If you can take it at night when cancer is more active do this. Sip it every twenty minutes and aim to take it over 5 hours.
Do this for two days then stop. Best 4 days before chemo cycle.
Stop 2 days before chemotherapy and on the day of chemotherapy and then restart 4 days before the next cycle.
If available in IV form, this is the best method. There is a clinic in Turkey who offer this therapy. Inhibits aerobic and anaerobic glycolysis.
Very supportive with tumour necrosis where the inflammatory response is triggered. Available at yourhealthbasket.
This is the primary Glutamine Inhibitor
Sodium Phenylbutyrate
1g to start and increase gradually to 2g 3 x daily. 1/3 of daily dose in the day and 2/3 at night when cancer is more active.
Crosses the blood/brain barrier
This website was suggested by an integrative doctor. It usually has to be prescribed.
Cold press juicing is a great way to increase nutrients without filling up on pulp. Try to do at least 1 juice a day.
Liver detox
Raw beetroot
Carrot
Green apple
Celery
Lemon to sweeten
Ginger can be added
Green Juice
Kale
Spinach
Avocado
Green apple (after the avocado. It helps to push it through the juicer)
Papaya (Platelet support)
Berries
Celery
DETOX
Zeolite and Infrared Sauna for detoxing.
Daily detox for a 3-week period. Repeat every 6 months.
Take 50mg Niacin. (Not Niacinamide).The flushing kind. This is what you want to achieve. It can make you itch initially. This is normal and will pass. You can take an antihistamine if not contraindicated. Loratadine is in the protocol. Exercise for 30 minutes after taking the Niacin to encourage lymphatic drainage. Rebounding. Walking.
3 hours after the Niacin, use the infrared sauna at 55C for 30 minutes. Take a 10-minute break the do another 30 minutes.
Replace fluids. Water and electrolytes to replace magnesium and calcium.
Take zeolite to remove gut toxins and heavy metals.
Baths with 1 cup Epsom salts and 1 cup baking soda/bicarbonate
Do this preferably after Infrared Sauna. 2 cups of Epsom Salts. Soak for 20 mins then shower to remove residue.
2 Deoxy d Glucose available at yourhealthbasket
Gut support Aloe Vera
Rebounding on a mini trampoline clears lymphatic system (Short bursts)
Remove toxins from the home. Non-Toxic cleaning products. Check candles. These can be full of chemicals.
Use ‘clean’ deodorant and shower products. I like Tropics. Avoid aluminium.
Drink filtered water. Remove heavy metals.
Castor Oil Packs for liver detox yourhealthbasket
Lymphatic drainage
Dry brushing towards the heart before a shower. You can use your hands to massage the neck (directly under the chin).
Elevating the legs above the heart helps with drainage, especially if there is fluid on the legs.
Rotating wrists and ankles regularly will help with lymphatic drainage.
Rebounding (min trampoline) 10 minutes daily.
Lawrence O'Connor 